I Am Living With One Kidney

March 13, 2011
Can you live with one kidney? Yes, you can, at least I am living with one kidney only.

Before I tell you my story and how I manage my life after my left kidney was removed because of cancer, let me make one thing very clear: there is a whole variety of reasons why people will have to learn with one kidney, such as a kidney transplant or kidney cancer for example. It all depends on your specific situation how you either need to or want to change your life after you lost one kidney. What you are going to read is my story and what I feel very comfortable with might sound strange, unbearable or whatever to you. Do whatever you think is the right thing to do, or of course, whatever is medically necessary to live your life with one kidney.

So, here is what happened to me in a nutshell. It all started with a weird kind of pain in both flanks of my lower back. And ‘weird’ meaning, I knew it wasn’t muscular even though around that time I had been doing some heavy duty work outside on our patio which required me to do strenuous physical tasks I wasn’t used to. But that pain was very different from soreness or a pinched nerve. Anyway, I decided to ignore it. Not a good idea! A few days later I urinated bood. Another few days later, there were also clots of tissue among the blood. Time to see an urologist. Long story short, my left kidney was in the process of dissolving. It was completely eaten alive by a large 7 cm tumor which has been feasting on my organ for 20 years according to the pathology. I was lucky, the renal cell carcinoma had not yet spread outside the organ but was entirely confined to my left kidney. A few months later, it was removed via a radical laparoscopic nephrectomy. That was on November 30 of 2009.

And ever since I’ve been living with one kidney. Right after the surgery it was tough, I must admit. I was actually discharged one day after the surgery. That was a stretch. I remember my wife driving me home from New York Presbyterian/Columbia University over the George Washington Bridge back to New Jersey. The pain medication began to wear off and I wasn’t miserable. But a few days later things got better. I was off work for a whole month which gave me enough time to recover.

According to my oncologist, the only thing I need to make sure is to stay hydrated. He also told me to stay away from excess amounts of potassium (which is found in larger concentrations in some foods, such as bananas for instance). But I was surprised when he told me that other than that I am free to eat or drink whatever I want to.

I personally decided to go a step further by switching to a primarily whole food plant based diet and by cutting out processed foods to the extent possible. This change in lifestyle resulted in me feeling better than ever before.
The only thing I noticed is that I sometimes get very tired without a warning. Not that I would fall asleep on the spot – I just get tired. Other than that, my life with only one kidney is as normal as it was before.

Send me an email if you have specific questions regarding how it is living with one kidney, kidney cancer, etc. and I’d be more than happy to share my experience with me.

Picture of me after my kidney cancer surgery:



 

What does 'lesion on kidney' mean?

March 13, 2011
Cancer is a very complex disease. I had to learn that the hard way. first my wife got diagnosed with breast cancer and later on I was diagnosed with kidney cancer. If there is one thing I came to understand is that everybody's cancer is very different. The the same applies to kidney lesions. You may have seen the expression 'lesion on kidney' on pathology reports - it wasn't on mine. My kidney was completely overshadowed by a large 7cm mass and way beyond the stage for a kidney lesion.

So basi...

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What are the commonalities between kidney stones symptoms and kidney cancer?

February 19, 2011
When I encountered the blood in my urine alongside this weird abdominal pain, I had no idea that I would get diagnosed with kidney cancer within a matter of two weeks. My doctor, my family and my friends were convinced that those were typical kidney stones symptoms plus the fact that I was only 37 years old was another indicator leading us to believe that cancer was out of the picture. But it wasn’t.

Anyway, let’s start with some basic information about kidney stones, medically referred to...

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What Are The Renal Cancer Survival Rates?

January 18, 2011
Well, what can I tell you about statistics and survival rates, or specifically the renal cell cancer survival rates? Everything is relative. And whatever you are about to learn this or any other cancer website, keep in mind: those are just numbers, and you are not a number. You don’t know in what category you fall. Later on I will give you a good example why cancer statistics are almost completely irrelevant to the individual patient, at least in my opinion.

It is only normal if you have jus...

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What Are The Available Metastatic RCC Medicines?

January 18, 2011

Image Courtesy of Novartis Pharameceuticals Corporation.

Link to official Afinitor website.


Among the most commonly used metastatic RCC meds are Sutent® (Sunitib) by Pfizer and Nexavar® by Bayer.
On January 26, 2006, the FDA approved Sunitinib which is marketed by the pharmaceutical company Pfizer as Sutent, as a so called multi targeted receptor tyrosine kinase inhibitor, for the treatment of renal cell carcinoma (RCC), also commonly referred to as kidney cancer.

Sutent was also approved by t...

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What Are The Options For The Treatment Of Renal Cell Carcinoma?

January 12, 2011
The treatment of renal cell carcinoma depends on a variety of different factors, including the stage of the disease, the age of the patient, his general health and other aspects. Usually, the appropriate treatment protocol is being planned by the patient and his team of doctors.

At this point, let me pause for a minute and emphasize on the importance of getting a second (or even third) opinion. When I was diagnosed with kidney cancer, I wanted everything to be done and over with as quickly as ...

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What Is A Kidney Stent?

January 3, 2011
I remember very well when my urologist told me that he will have to place a ureteral stent, commonly referred to as kidney stent, in my ureter. I was just diagnosed with kidney cancer a few weeks earlier. The blood in my urine and the dull pain I had experienced for a while turned out to be the result of a 7 cm tumor that was in the process of eating my left kidney.

I had had no idea what I was in for when I just nodded my head to my urologist’s announcement. Kidney stent – to me that sou...

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What Are The Stages Of Renal Cell Carcinoma?

December 24, 2010
The stages of renal cell carcinoma are categorized through a system called Tumor Node Metastasis (TNM). Here is a short description what each letter stands for:

  • T: Is a descriptor of the size of the primary tumor, measured by a scale of 0 to 4.
  • N: Indicates whether or not the cancer has invaded lymph nodes. The scale goes from 0 to 3.
  • M: This unit indicates the degree to which the disease has metastasized  and affected other organs.
Before we look into the different stages of renal cell carcinom...
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What is transitional cell carcinoma of the kidney?

December 3, 2010
The so called transitional cell carcinoma of the kidney (TCC), also referred to as renal urothelial carcinoma (UC), is the least common form of kidney cancer. It only accounts for approximately seven percent of all kidney cancer diagnoses.

The cure rates for transitional cell carcinoma are roughly 90% as long as the cancer is confined to the center of the kidney, also know as  renal pelvis. However, and like many other malignant diseases, the cure rates decrease drastically once the cancer ha...

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What are the signs of bone metastases in renal cell carcinoma?

December 3, 2010
Renal cell carcinoma, like so many other forms of cancer, is known for its long latency period. There are basically no early warning signs which must in large part be attributed to the existence of a second functional kidney. In my case for instance, my left kidney was completely consumed by a large mass and basically in the process of dissolving, however since my right kidney was perfectly fine, I did not encounter any symptoms of renal cell carcinoma up until the point I peed blood. Accordi...

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About Me


Tony Ulrich My wife got diagnosed with breast-cancer in March of 2009. Seven months later I received my kidney cancer diagnosis. My left kidney had to be removed. According to the pathology report, my Renal Cell Carcinoma probably started over 20 years ago - around that time I have been exposed to high concentrations asbestos. I am not a doctor and it is not my intention to give you advice. But this website has to purpose to share my experience with you and over course of time, it will grow into a one-stop-shop information resource around asbestos, asbestos induced diseases, cancer treatment options and cancer in general. Feel free to leave a comment anywhere in this blog or contact me via email: planetcaravan@gmx.com

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